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The Community Portal for Thalassaemia and other Haemoglobinopathies
About

The ITHANET PORTAL is a website dedicated to thalassaemia. Visitors to the portal will be able to participate in the identification of areas in thalassaemia, quick exchange of information, sharing of ideas and enhancing of global awareness of pertinent issues in thalassaemia. The portal offers the latest news, techniques and information on thalassaemia and also serves as a platform in facilitating easy exchange of information and dialogues between interested groups.

Additionally, it provides easy access to international communities concerned with thalassaemia and facilitates the promotion or dissemination of findings and knowledge. This user-friendly site enables anyone at country or organisation level to view the information on the portal. Visitors are encouraged to sign-up as member and share those knowledge and experiences in thalassaemia-related topics, as well as to fully enjoy the benefits of a visit to the Ithanet Portal. Members can become actively involved in the site and enjoy the following benefits:

  • Uploading information such as articles, documents, events and thalassaemia-related news to the portal
  • Receiving activity updates and discussion lists for topics of interest
  • Receiving e-mail alerts of new content from other members of the ITHANET PORTAL
  • Participating in discussion forums

The ITHANET PORTAL was initiated by the ITHANET project (RI-2004-026539) a two-year (2006-2008) project funded by the European Union FP6 to assess the importance of collaboration on thalassaemia and to provide recommendations on future electronic infrastructure development.

The first update of the ITHANET PORTAL was supported by the ITHANET+ project (ΤΠΕ/ΟΡΙΖΟ/0308(ΒΙΕ)/16), funded by the Research Promotion Foundation (RPF) of Cyprus.

International Advisory Committee

The ITHANET International Advisory Committee advises the ITHANET Development Team on possible additions and improvements to the portal and gives expert opinions when needed.

The task of committee member involves:

  • Participation in teleconference meetings approximately every two months
  • Commenting on content and functionality to be implemented on the ITHANET portal
  • Discussion face-to-face at international conferences
The Committee Members:
  • Erol Baysal
  • Alex Felice
  • Jan Traeger Synodinos
  • Ali Taher
  • Maria Sitarou
  • Yeshim Aydinok
  • Roberto Gambari
  • Swee Lay Thein
  • Suthat Fucharoean
  • Stefano Rivella
  • Lila Yannaki
  • Cornelis L. Hartveld
  • Petr Holub
  • John Old
  • Michael Angastiniotis
  • Marina Kleanthous
  • Jim Vadolas
  • Aurelio Maggio
  • Soteroulla Christou
The Development Team Members:
  • Marina Kleanthous
  • Petros Kountouris
  • Carsten W. Lederer
  • John Old
  • Kamil Ergüler

Acknowledgements

The images on the front page are adapted from jscreationzs / FreeDigitalPhotos.net (ITHANET Base), healingdream / FreeDigitalPhotos.net (ITHANET Events), dave / morgueFile.com (ITHANET Wiki), Salvatore Vuono / FreeDigitalPhotos.net (ITHANET Org&Net), renjith krishnan / FreeDigitalPhotos.net (the rest).

The work was supported by the European Union FP6, the Research Promotion Foundation (RPF), the EU Structural Funds in Cyprus, and The Cyprus Institute of Neurology and Genetics.

  • ISM
  • RPF
  • cing
  • CR
  • DiaTam
  • EU