Patient Societies

The Egyptian Thalassaemia Association

Description

The Egyptian Thalassemia Association was established in 1990 to deliver quality comprehensive care to the growing number of thalassemia patients in the Egypt. The Association foresters a comprehensive program designed to provide primary and tertiary care along with education, outreach, genetic counseling, and psychosocial care to patients, their families and those at risk for carrying the disease. Help in creating Thalassemia centers in Cairo and other Egyptian Governorates. Member of the TIF in 1992.

Posted Friday, July 11, 2008 6:31 AM by christof | 0 Comments

Filed under: Egypt

Thalassaemia International Federation

Description
The Thalassaemia International Federation (TIF) is registered as a non-profit organization, under Cyprus Company Law. The Federation is governed by an 18-member Board of Directors (maximum two per country), elected for a term of 4 years. Under the terms of TIF’s Constitution, 50% of its Board Directors must be patients with thalassaemia.

TIF’S objectives and goals

Promote awareness about thalassaemia, its prevention, medical and other care
Promote and support studies and research for the continuous improvement of prevention and clinical care strategies and for achieving the total cure of thalassaemia;
Disseminate the knowledge, experience and expertise gained from countries with successful control programmes to those in need;
Procure the right of every patient for equal access to quality medical care.

Posted Thursday, May 31, 2007 7:00 AM by christof | 0 Comments

Filed under: Cyprus, TIF

Thalassaemia Society of South Australia

Description

The Thalassaemia Society of SA is a non-profit organisation that aims to:

· Raise public awareness for the genetic blood condition Thalassaemia;

· Ensure that people with Thalassaemia in SA receive the optimum standard of treatment;

· Provide advocacy on behalf of patients;

· Support and encourage medical and social research projects designed to improve the quality of life for people with haemoglobin conditions; and

· Obtain and distribute the latest scientific and medical information on Thalassaemia from around the World.

Posted Friday, May 18, 2007 6:58 AM by christof | 0 Comments

Filed under: Australia

Thalassaemia Society of Singapore

Description
Thalassaemia Society of Singapore was formed by a group of parents and volunteers to meet the following objectives:

a. create public awareness and disseminate relevant and the latest medical information relating to Thalassaemia.

b. provide community support and social interaction among Thalassaemia patients and their families.

c. provide financial aid to needy families and referral of social and welfare services.

Posted Friday, May 18, 2007 6:56 AM by christof | 0 Comments

Filed under: Singapore

Thalassaemia Society of Victoria

Description
The Thalassaemia Society of Victoria (TSV) was established in October 1979 by health professionals and members of the community affected by the condition. The TSV, which operates out of the Thalassaemia Centre in Melbourne, educates and distributes information about thalassaemia and other haemoglobin conditions, and seeks to improve the services available to those in need. The TSV is a member of the Australian Thalassaemia Association (ATA) and the Thalassaemia International Federation(TIF).

The Society works as a specialised community education service funded by the Department of Human Services (DHS). The TSV was established to provide some aspects of health care, support and counselling for people with thalassaemia related conditions and their families.

Posted Friday, May 18, 2007 6:51 AM by christof | 0 Comments

Filed under: Australia, Victoria

Thalassaemia Society of Pakistan

Description
The Pakistan Society was established in 1994 and is an organization of volunteers from all walks of life, who have dedicated themselves to achieve the following goals:

1) Provide the best care and treatment for children with Thalassaemia
2) Create awareness about Thalassaemia
3) Prevention through prenatal diagnosis.

Posted Friday, May 18, 2007 6:46 AM by christof | 0 Comments

Filed under: Pakistan

Sarawak Thalassaemia Society

Description
The Sarawak Thalassaemia Society was formed on 5th February 1994. Initially the Society comprised only of the parents of the thalassaemic children and some medical advisors. Its principal function is as a network of information and mutual support group for the parents and families. In 1995, the Society's membership expanded beyond the patient-parent-medical circle to include non-thalassaemic people.

Our primary objectives are:

To ensure that all thalassaemia patients in Sarawak are accorded full treatment
To give support to the thalassaemia families
To create public awareness about thalassaemia

Posted Friday, May 18, 2007 6:41 AM by christof | 0 Comments

Filed under: Malaysia, Sarawak

India Thalassaemia Society

Description
With more than 150 million people carrying the Thalassemia trait in Asia alone, much needs to be done to make people aware and curb its spread to future generations.
At Thalassemics India, it is our constant endeavor to work towards a Thalassemia-free world.
Established in 1986, Thalassemics India was conceived to check and help deal with Thalassemia. A non-governmental organization, Thalassemics India is working zealously across the country, operating in close association with doctors, drug/equipment companies throughout the country and abroad, hospitals, Thalassemia associations & centers. Thalassemics India is also a voting member of Thalassemia International Federation (TIF), an international body based in Cyprus.
read more...

Posted Friday, May 18, 2007 6:37 AM by christof | 0 Comments

Filed under: India