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General information for Kuwait

Continent: Asia
Capital: Kuwait City
Population: 2789132
Area (in sq km): 17820.0

Haemoglobinopathy-specific healthcare policy information for Kuwait

Healthcare policyComment/InfoReference
Prevention programme: Yes (National)Premarital testing implemeted by law.
SCD newborn screening: No
Prenatal screening: No
Antenatal screening: No
Haemoglobinopathies patient registry: Yes (National)
Rare disease patient registry: No
Dedicated treatment centres: No
Blood transfusion availability: Yes (National)
MRI facilities: Yes (National)[PMID: 26076396]
Patient associations: Yes (National)
Genetic counselling: No

Prevalence and incidence of major haemoglobinopathies in Kuwait

Prevalence of β-thalassaemia carriers: 3 % of the population[PMID: 24672827]
Prevalence of sickle cell disease carriers: 6 % of the population[PMID: 24672827]
Prevalence of α-thalassaemia carriers: 4.6 % of the population[PMID: 23224852]
Expected incidence of β-thalassaemia: 12 expected affected births/year[PMID: 24672827]
Expected incidence of sickle cell disease: 100 expected affected births/year[PMID: 24672827]
Incidence of sickle cell disease: 116 affected births/yearMedian value estimated using statistical model and demographic data.[PMID: 23103089]
Known β-thalassaemia patients: 129 patients[PMID: 24672827]
Known sickle cell disease patients: 500 patients[PMID: 24672827]

Mutation frequencies in Kuwait

Overview (most frequent mutations with their observed average values and range)

IVS II-1 G>A: 29.25 % (25.2 % – 33.3 %)CD 39 (CAG>TAG): 15.40 %
IVS I-6 (T>C): 13.45 % (5.7 % – 21.2 %) IVS I-5 (G>C): 10.35 % (6.1 % – 14.6 %)

Detailed mutation frequencies

Entry IDLocusRegionEthnic GroupPopulation TypeSample SizeStudy period (from)Study period (to)ReferenceComments
13519β-locusCountry-wideKuwaitiPatients12319947701914Frequencies are shown for beta-globin gene mutations. Study samples were acquired from three hospitals in Kuwait.
13520β-locusCountry-wideMulti-ethnicPatients33201626076396Frequencies are shown for beta-globin gene mutations. Study samples were acquired from hematology clinics in Mubarak, Amiri and Adan Hospitals, Kuwait. and were mainly Kuwaitis.

Organisations in Kuwait

A list of all organisations in Kuwait stored in the ITHANET database is shown below. For more information, click on the corresponding organisation name or visit the detailed ITHANET Organisations page

NameDepartmentOrganisation type
Kuwait UniversityFaculty of MedicineHigher Education, Research Center


1Al-Humood, Salah2016-10-20Information on healthcare policies reviewed and updated.
2Al-Mulla, Fahd2016-10-20Information on healthcare policies reviewed and updated.

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Important Note: The relative allele frequencies presented in IthaMaps are not calculated by ITHANET, but they are extracted from the corresponding publications. ITHANET is not responsible for any mistakes in the data. Please use this information with caution! We encourage scientists that have more detailed or updated epidemiological information to contact us.

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Future events

  • Towards Transformative Therapies for Sickle Cell Disease
  • Ninth International Leaders in Biobanking Congress
  • 14th International Conference on Thalassaemia & Haemoglobinopathies & the 16th TIF International Conference for Patients & Parents
  • 5th Annual Advances in Prenatal Molecular Diagnostics
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