Frequently Asked Questions - The ITHANET Portal

FAQs - The ITHANET Portal

The ITHANET Portal is a website dedicated to thalassaemia and other haemoglobinopathies. The portal provides:

  1. the latest news, events, publications and clinical trials in the field,
  2. easy access to international communities, organisations and experts concerned with haemoglobinopathies, 
  3. techniques, protocols, guidelines and information on haemoglobinopathies and 
  4. free access to databases an tools relevant to different aspects of haemoglobinopathies, such as sequence variations, epidemiology and phenotype
Registered users are automatically signed to the ITHANET Newsletter list and, thus, are able to receive to the inbox the most recent updates and announcements of the ITHANET portal.

Please use the Contact Form to ask any questions or make any comment for the ITHANET Portal.

Please click on "News" under the option "Latest information" of the main menu to see a list of the most recent news added in ITHANET. You can click on the title of the item of your interest to read more information or to share it to social networks.

Please click on "Events" under the option "Latest information" of the main menu to see a list of all future events related to haemoglobinopathies. You can use the "Search" box to perform live search in the table, while you can find more information by clicking on the title and navigate to the official website of the event. Finally, we also keep an archive of past events, which can be found by clicking on the link below the events table.

Please click on "Publications" under the option "Latest information" of the main menu to see the list of publications related to haemoglobinopathies. This list is updated every week. You can use the "Search" box to find publications of your interest, while you can navigate to an article's PubMed page by clicking on the publication title.

You can see the list of clinical trials related to haemoglobinopathies by navigating to "Clinical Trials" under the option "Latest information" of the main menu. The list of clinical trials is updated every week and retrieved from You can use the "Search" box to perform live search in the table, while you can navigate to the trial's description page at by clicking on the title.

Please use the "Community" option of the main menu to see the list of organisations and experts related to haemoglobinopathies. Each organisations is assigned to one or more types based on its activities. By clicking on the organisation's name, you can see detailed information about the organisation and navigate to its website for more information. Similarly, the expertise of each expert is reported in the "Experts" table, with more detailed description and contact details available by clicking each expert's name. 

ITHANET is supported by the European Union through FP6 and FP7 research projects, the Cyprus Research Promotion Foundation and the Cyprus Institute of Neurology and Genetics.

Yes, all ITHANET updates and announcements are shared on Twitter, Facebook and LinkedIn.

Future events

  • PGDIS 2018 - 17th International Conference on Preimplantaion Genetics
  • European Conference on Rare Diseases & Orphan Products (ECRD) 2018
  • 6th International Molecular Diagnostics Europe
  • International Summit on Assisted Reproduction and Genetics in Israel
  • Rare Diseases and Orphan Drugs

View all events

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