ENROL online kick-off meeting was successfully held on July 2nd, with more than 120 registered participants

The European Rare Blood Disorders Platform (ENROL) conceived in the core of ERN-EuroBloodNet to serve as an umbrella for both new and already existing registries on rare haematological disorders (RHD), has officially started June 1st, 2020. ENROL online kick-off meeting was successfully held last July 2nd with more than 120 registered participants, including ERN-EuroBloodNet members, affiliated partners, candidates, EURORDIS and patients’ representatives, European Hematology Association (EHA) representatives, researchers and registries’ curators. The meeting started with a welcome and overview of ENROL from the platform coordinator followed by two blocks of presentations highlighting ENROL implementation by the different tasks leaders and the involvement of the different stakeholders as fundamental pillars for the successful implementation of ENROL, including patients, hospitals’ CEOs and the legal and ethical teams. For more information, the main outcomes of the meeting and the slides presented are available here.