Rare Disease Day 2018

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28 February 2018 marks the 11th edition of Rare Disease Day, coordinated by EURORDIS, aiming to raise awareness about rare diseases and their impact on patients' lives. This year’s theme is research, recognizing patient and public involvement in rare disease research progress. Cures and treatments exist for a few conditions but are distant hope for most. This year’s Rare Anaemia Day is celebrated to promote an increased and more effective patient involvement in rare disease research. On and around this day, rare disease patient communities from countries and regions all over the world will hold awareness-raising activities based on the slogan Show your rare, Show you care, encouraging everyone’s participation by posting an image or selfie on any social media channel of their faces painted in the Rare Disease Day logo colours and including the hashtags #ShowYourRare, #MyRare or #RareDiseaseDay. 

 

More information: Rare Disease Day 2018; The 2018 Rare Disease Day Video