Welcome to IthaMaps
IthaMaps is a global epidemiology database of heamoglobinopathies, illustrating published data on a dynamic global to regional map. Country-specific information on haemoglobinopathy-related policies, prevalence, incidence and overall disease burden is given, including relative allele frequencies of specific globin mutations in each country and/or region, dynamically linked to corresponding IthaGenes entries.
IthaMaps content was supported by partnership with the HVP Global Globin 2020 Challenge
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General information for Angola
Angola |
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Haemoglobinopathy-specific healthcare policy information for Angola
Healthcare policy | Comment/Info | Reference | |
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Prevention programme: | No | There is no prevention programme in all country | |
SCD newborn screening: | Yes (Regional) | It is practiced at subnational level and is generally provided only in tertiary health facilities, and generally in private ones; ARISE is supporting a NBS in one Hopsital in Luanda | |
Prenatal screening: | No | ||
Antenatal screening: | No | ||
Haemoglobinopathies patient registry: | No | Some local tertiary public and some private health facilities have their own registry of Clinical data. | |
Rare disease patient registry: | No | ||
Dedicated treatment centres: | Yes (Regional) | One local public instititute and some local secondary and tertiary ones | |
Blood transfusion availability: | Yes (National) | In hospitals where care is provided, there is always a shortage of voluntary donors and donors are generally are family members | |
Iron chelation availability: | No | ||
MRI facilities: | No | Some institutions have access to CT and few ones have MRI facilities (private ones) | |
Patient associations: | Yes (Regional) | Almost non-existent, the few ones are NGOs, but there are 4 groups of patients | |
Genetic counselling: | No | Informally at the point of care or at the consultation |
Prevalence and incidence of major haemoglobinopathies in Angola
Haemoglobinopathy | Comment/Info | Reference | |
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Prevalence of sickle cell disease carriers: | 22 % of the population | Based on the latest NBS data | |
Prevalence of Hb C carriers: | 0.03 % of the population | Based on the latest NBS data | |
Incidence of sickle cell disease: | 13300 affected births/year | approximately |
Global Burden of Disease data for Angola
Migration data for Angola
Mutation frequencies in Angola
Organisations in Angola
Organisations in Angola are currently not available
Microattributions
A/A | Contributor(s) | Date | Comments |
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1 | Elion, Jacques | 2017-10-17 | Information on SCD newborn screening reviewed. |
2 | Brito, Miguel | 2024-07-25 | Information of healthcare policies |
3 | Brito, Miguel | 2024-09-26 | Information on Haemaglobinopathy status parameters |
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Important Note: The relative allele frequencies presented in IthaMaps are not calculated by ITHANET, but they are extracted from the corresponding publications. ITHANET is not responsible for any mistakes in the data. Please use this information with caution! We encourage scientists that have more detailed or updated epidemiological information to contact us.
Disclaimer: The information on this website is provided as an information resource only and must not to be used as a substitute for professional diagnosis and treatment. The ITHANET Portal and IthaMaps are not responsible or liable for any advice, course of treatment, diagnosis or any other information, services or products that an individual obtains through this website.