Welcome to IthaMaps
IthaMaps is a global epidemiology database of heamoglobinopathies, illustrating published data on a dynamic global to regional map. Country-specific information on haemoglobinopathy-related policies, prevalence, incidence and overall disease burden is given, including relative allele frequencies of specific globin mutations in each country and/or region, dynamically linked to corresponding IthaGenes entries.
IthaMaps content was supported by partnership with the HVP Global Globin 2020 Challenge
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General information for Jordan
 Jordan |
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Haemoglobinopathy-specific healthcare policy information for Jordan
| Healthcare policy | Comment/Info | Reference | |
|---|---|---|---|
| Prevention programme: | Yes (National) | Based on premarital screening since 2004. Mandatory. | [PMID: 11773575] |
| SCD newborn screening: | Yes (National) | Haemoglobinopathies are part of the official NBC program and include SCD. | [PMID: 35013912] |
| Prenatal screening: | Yes (National) | Available upon request as a self-pay service. | [PMID: 11773575] |
| Patient associations: | Yes (National) | E.g.: Jordanian Thalassaemia & Hemophilia Society | |
| Genetic counselling: | Yes (National) | Offered as part of the prevention programme. | [PMID: 11773575] |
Prevalence and incidence of major haemoglobinopathies in Jordan
| Haemoglobinopathy | Comment/Info | Reference | |
|---|---|---|---|
| Prevalence of β-thalassaemia carriers: | 3.5 % of the population | [PMID: 24672827] | |
| Prevalence of sickle cell disease carriers: | 1.5 % of the population | Up to 6% in some reports. | [PMID: 24672827] |
| Prevalence of α-thalassaemia carriers: | 2.26 % of the population | 2.26% in Badia region, 3.1% in North Jordan, and 3.5% in Jordan valley | [PMID: 23224852] |
| Expected incidence of β-thalassaemia: | 38 expected affected births/year | [PMID: 24672827] | |
| Expected incidence of sickle cell disease: | 40 expected affected births/year | [PMID: 24672827] | |
| Incidence of sickle cell disease: | 145 affected births/year | Median value estimated using statistical model and demographic data. | [PMID: 23103089] |
| Known β-thalassaemia patients: | 1300 patients | [PMID: 24672827] | |
| Known sickle cell disease patients: | 150 patients | [PMID: 24672827] |
Global Burden of Disease data for Jordan
Migration data for Jordan
Mutation frequencies in Jordan
Overview (most frequent mutations with their observed average values and range)
β-locus
| IVS I-110 G>A: 25 % | IVS II-1 G>A: 15 % |
| IVS II-745 C>G: 14.2 % | IVS I-1 G>A: 10 % |
Detailed mutation frequencies
| Entry ID | Locus | Region | Ethnic Group | Population Type | Sample Size | Study period (from) | Study period (to) | Reference | Comments | |
|---|---|---|---|---|---|---|---|---|---|---|
| 23351 | β-locus | Country-wide | Jordanian | Patients | 240 | 2001 | 11559932 | Frequencies are shown for beta-globin gene mutations. Study samples were acquired from ten major hospitals in the main cities of Jordan. |
Organisations in Jordan
A list of all organisations in Jordan stored in the ITHANET database is shown below. For more information, click on the corresponding organisation name or visit the detailed ITHANET Organisations page
| Name | Department | Organisation type |
|---|---|---|
| King Hussein Medical Center (KHMC) | Molecular Hematology Laboratory, Princess Iman Research Center for Laboratory Sciences | Medical Center |
Microattributions
No microattibutions were provided for Jordan. Please contact us, if you are willing to review existing information or provide new data.
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Important Note: The relative allele frequencies presented in IthaMaps are not calculated by ITHANET, but they are extracted from the corresponding publications. ITHANET is not responsible for any mistakes in the data. Please use this information with caution! We encourage scientists that have more detailed or updated epidemiological information to contact us.
Disclaimer: The information on this website is provided as an information resource only and must not to be used as a substitute for professional diagnosis and treatment. The ITHANET Portal and IthaMaps are not responsible or liable for any advice, course of treatment, diagnosis or any other information, services or products that an individual obtains through this website.