Welcome to IthaMaps
IthaMaps is a global epidemiology database of heamoglobinopathies, illustrating published data on a dynamic global to regional map. Country-specific information on haemoglobinopathy-related policies, prevalence, incidence and overall disease burden is given, including relative allele frequencies of specific globin mutations in each country and/or region, dynamically linked to corresponding IthaGenes entries.
IthaMaps content was supported by partnership with the HVP Global Globin 2020 Challenge
Search
General information for Philippines
Philippines |
|
---|
Haemoglobinopathy-specific healthcare policy information for Philippines
Healthcare policy | Comment/Info | Reference | |
---|---|---|---|
Prevention programme: | No | From: Thalassaemia Reports 2012, TIF Pan-Asian Conference. | |
SCD newborn screening: | Yes (National) | Haemoglobinopathy NBS since 2014, performed by 7400+ hospitals and birthing centers. | [PMID: 34204320] |
Prenatal screening: | No | ||
Rare disease patient registry: | No | Largely institution-specific databases. | [PMID: 27484654] |
Dedicated treatment centres: | Yes (National) | Newborn screening continuity clinics (NBSCC) providing medical follow-up and referral to regional disease specialists. | [PMID: 34204320] |
Blood transfusion availability: | No | Limited to a few centres, such as The Philippine Childrens Medical Centre. From: Thalassaemia Reports 2012, TIF Pan-Asian Conference. | |
Iron chelation availability: | Yes (National) | Iron chelators (DFO, DFP, DFX) and combination DFO and DFP are available, but purchased by personal funds. From: Thalassaemia Reports 2012, TIF Pan-Asian Conference. | |
MRI facilities: | No | From: TIF report on South East Asian Nations, Aug. 2013. | |
Patient associations: | Yes (National) | E.g. Balikatang Thalassemia (Ba-Tha) was founded in 1993. | |
Genetic counselling: | Yes (National) | Newborn screening continuity clinics (NBSCC) oversight and consultation is provided by three Centers for Human Genetic Services (CHGS). Each of the NBSCCs is directed by a medical geneticist knowledgeable in linking primary care physicians to regional disease specialist. | [PMID: 34204320] |
Prevalence and incidence of major haemoglobinopathies in Philippines
Haemoglobinopathy | Comment/Info | Reference | |
---|---|---|---|
Prevalence of β-thalassaemia carriers: | 1.2 % of the population | [PMID: 27040959] | |
Prevalence of α-thalassaemia carriers: | 5 % of the population | ||
Prevalence of Hb E carriers: | 0.4 % of the population | [PMID: 27040959] | |
Expected incidence of β-thalassaemia: | 153 expected affected births/year | [PMID: 24672827] | |
Known β-thalassaemia patients: | 600 patients | [PMID: 24672827] |
Global Burden of Disease data for Philippines
Migration data for Philippines
Mutation frequencies in Philippines
Organisations in Philippines
Organisations in Philippines are currently not available
Microattributions
No microattibutions were provided for Philippines. Please contact us, if you are willing to review existing information or provide new data.
To provide new epidemiological information and/or report mistakes, please register/log in first or use the Contact Us form.
Important Note: The relative allele frequencies presented in IthaMaps are not calculated by ITHANET, but they are extracted from the corresponding publications. ITHANET is not responsible for any mistakes in the data. Please use this information with caution! We encourage scientists that have more detailed or updated epidemiological information to contact us.
Disclaimer: The information on this website is provided as an information resource only and must not to be used as a substitute for professional diagnosis and treatment. The ITHANET Portal and IthaMaps are not responsible or liable for any advice, course of treatment, diagnosis or any other information, services or products that an individual obtains through this website.